AI Powered Rare Patient Network & Real World
Data Platform
Know Rare connects researchers & industry with our global patient network & real-world evidence to fuel better outcomes
VORGESTELLT IN
About Our Network
Connecting the people, researchers and communities in rare disease
25,000+
Mitglieder mit seltenen Krankheiten
300+
Medizinische Zentren weltweit
50+
Patientenorganisationen
Wie wir helfen
Programs that utilize our patient network and real world data platform to power all stages of therapeutic development
Pre Clinical
Utilize our patient app and network to help with research, trial planning, and observational studies
Commercialization
Advanced patient reach and engagement for in market therapies through our app and patient network
Klinische Studien
Proven, targeted patient recruitment program that’s successfully helped recruit over 40 global clinical trials
How it Works
Our AI tech platforms show insights on our programs through easy to use dashboards, providing metrics & transparency at all times
Machine learning–powered platform identifies eligible patients for clinical and observational trials, optimizing researcher–participant connection and accelerating study enrollment
AI-enabled platform delivering strategic insights from ongoing patient engagement and real-world data—driving smarter decisions across early to late-stage therapeutic development
Proven Results
Success across multiple therapeutic areas that have helped fuel programs and research studies throughout the world
60%
Average Network Engagement Rate
25%
Average Network Recontact Rate
75%
Average Rate for Randomization
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Myasthenia Gravis (gMG)
Amyotrophic Lateral Sclerosis (ALS)
Tubular Sclerosis Complex (TSC)
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Myositis (IIM)
Multifocal Motor Neuropathy (MMN)
Systemic Lupus Erythematosus (SLE)
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Bullous Pemphigoid (BP)
Pemphigus Vulgaris (PV)
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NUT Carcinoma
Rare Liposarcoma
Acute Myeloid Leukemia (AML)
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Sickle Cell Disease
Immune Thrombocytopenia (ITP)
Autoimmune Hemolytic Anemia (AIHA)
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Sanfilippo Syndrome (MPS-III)
X-linked Myotubular Myopathy (XLMTM)
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Focal Segmental-Glomerulosclerosis (FSGS)
Pulmonary Arterial Hypertension (PAH)
IgAN Kidney Disease
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Prader Willi Syndrome (PWS)
Lysosomal Acid Lipase Deficiency (LALD)
Organic Acidemias (PA, MMA)
Neueste Presse
Lesen Sie die neuesten Informationen darüber, wie wir im Bereich der seltenen Krankheiten etwas bewegen
Latest From Our Blog
Lesen Sie die Geschichten von Menschen, die jeden Tag mit einer seltenen Krankheit leben, und erfahren Sie mehr über die Forscher, die sich für eine bessere Zukunft einsetzen.
RARE RESILIENCY
VERÄNDERER IN SELTENEN FÄLLEN
Einsteigen Kontakt
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