The Loneliness of a Clinical Trial

Written By Sara Mazzilli

«No sabía que me sentiría tan sola al participar en un ensayo clínico»: esta es una de las muchas lecciones que ha aprendido Rare Human Lindsay, quien se incorporó a un ensayo clínico a principios de este año para tratar su miositis. 

Lindsay habla de lo difícil que es no teneruna comunidad a la que recurrir, sobre todo cuando solo hay unos pocos pacientes con su enfermedad rara que han pasado por el mismo tratamiento que ella acaba de recibir.

Orientarse en el ámbito de la atención médica de las enfermedades raras puede resultar extremadamente complejo. Si te interesa obtener más información sobre las últimas oportunidades de investigación relacionadas con tu enfermedad rara, puedes ponerte en contacto con el equipo de apoyo de Know Rare en support@knowrare.com.

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