The Waiting Game in a Rare Disease Clinical Trial
Written By Sara Mazzilli
Rare Human Lindsay is in the midst of her first clinical trial for dermatomyositis, a rare inflammatory disease that primarily affects the skin and muscles. So far, she has learned so much about the process and is eager to share some of her insights with the rare disease community.
If you are planning to pursue a clinical trial, find out why patience is one of Lindsay’s biggest recommendations, and follow Know Rare for more tips!
Navigating rare disease care can be exceptionally complex. If you are interested in learning more about the latest research opportunities in your rare disease, you can contact the Know Rare Support Team at support@knowrare.com.
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