Choosing What to Care About When Navigating a Rare Disease

Rare human Lindsay shares that there are things she does not care about anymore. She has had to lighten her load because she is carrying enough as she manages rare disease symptoms, specialists, and clinical trials.

Navigating rare disease care can be exceptionally complex. If you are interested in learning more about the latest research opportunities in your rare disease, you can contact the Know Rare Support Team at support@knowrare.com.


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Accepting Help is Hard

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Sharing the Silver Linings of Living with a Rare Disease