Sharing the Silver Linings of Living with a Rare Disease

Written By Sara Mazzilli

Lindsay, de Rare Human, comparte sus «aspectos positivos». No se trata de que «lo que no te mata te hace más fuerte», sino de que lo que no te mata te hace más valiente. Nos cuenta que ha establecido vínculos más profundos con los demás, ha mejorado su capacidad para pedir y aceptar ayuda, y ya no le da tanto miedo la palabra «no».

Orientarse en el ámbito de la atención médica de las enfermedades raras puede resultar extremadamente complejo. Si te interesa obtener más información sobre las últimas oportunidades de investigación relacionadas con tu enfermedad rara, puedes ponerte en contacto con el equipo de apoyo de Know Rare en support@knowrare.com.

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