Choosing What to Care About When Navigating a Rare Disease

Written By Sara Mazzilli

Lindsay, que padece una enfermedad rara, cuenta que hay cosas que ya no le importan. Ha tenido que aligerar su carga porque ya tiene bastante con lidiar con los síntomas de su enfermedad rara, los especialistas y los ensayos clínicos.

Orientarse en el ámbito de la atención médica de las enfermedades raras puede resultar extremadamente complejo. Si te interesa obtener más información sobre las últimas oportunidades de investigación relacionadas con tu enfermedad rara, puedes ponerte en contacto con el equipo de apoyo de Know Rare en support@knowrare.com.

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Sara Mazzilli
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