What I Didn’t Know About The Clinical Trial Selection Process

Written By Sara Mazzilli

Find out what Rare Human Lindsay discovered about the clinical trial selection process after joining a clinical study for her dermatomyositis!

Navigating rare disease care can be exceptionally complex. If you are interested in learning more about the latest research opportunities in your rare disease, you can contact the Know Rare Support Team at support@knowrare.com.

Latest from Know Rare

Blog v2
Having a Rare Disease is a Full-Time Job
Having a Rare Disease is a Full-Time Job
The Waiting Game in a Rare Disease Clinical Trial
The Waiting Game in a Rare Disease Clinical Trial
The Loneliness of a Clinical Trial
The Loneliness of a Clinical Trial
What I Didn’t Know About The Clinical Trial Selection Process
What I Didn’t Know About The Clinical Trial Selection Process
Getting Treatment and Dealing With Insurance
Getting Treatment and Dealing With Insurance
Caring for the Unseen: Supporting Caregivers of Those with Rare Diseases
Caring for the Unseen: Supporting Caregivers of Those with Rare Diseases
Organization Spotlight: Inspire
Organization Spotlight: Inspire
How a Second Opinion Changed My Daughter’s Life with Multiple Sclerosis
How a Second Opinion Changed My Daughter’s Life with Multiple Sclerosis
In the Shadow of Rare: Growing Up as the Healthy Sibling
In the Shadow of Rare: Growing Up as the Healthy Sibling
Life Hacks for Mobility Challenges: Bathroom Safety Tips and Tricks
Life Hacks for Mobility Challenges: Bathroom Safety Tips and Tricks
Life Hacks for Mobility Challenges: Pool Noodles to the Rescue
Life Hacks for Mobility Challenges: Pool Noodles to the Rescue
Life Hacks for Mobility Challenges: Dress with Success
Life Hacks for Mobility Challenges: Dress with Success
Life Hacks for Mobility Challenges: Get Smart in the Home
Life Hacks for Mobility Challenges: Get Smart in the Home
Life Hacks for Mobility Challenges: Tips for the Kitchen
Life Hacks for Mobility Challenges: Tips for the Kitchen
How ITP Patients and Doctors Perceive Fatigue Differently — and How Journaling and Setting Goals Can Help
How ITP Patients and Doctors Perceive Fatigue Differently — and How Journaling and Setting Goals Can Help
Finding Your Voice: Writing About Your Rare Disease Story
Finding Your Voice: Writing About Your Rare Disease Story
IgA Nephropathy Patients With Family History Face Higher Kidney Risks
IgA Nephropathy Patients With Family History Face Higher Kidney Risks
Share your Rare: Sierra Domb
Share your Rare: Sierra Domb
How IgA Nephropathy Is Treated: A Look at Today’s Medications and Tomorrow’s Breakthroughs
How IgA Nephropathy Is Treated: A Look at Today’s Medications and Tomorrow’s Breakthroughs
Empowering Patients: The Role of Education in Rare Disease Treatment Plans
Empowering Patients: The Role of Education in Rare Disease Treatment Plans
Five Years of Waiting Rooms
Five Years of Waiting Rooms
Owning What Makes Us Rare
Owning What Makes Us Rare
Rare Diseases South Africa: A Beacon of Hope
Rare Diseases South Africa: A Beacon of Hope
Understanding Epidermolysis Bullosa: A Journey of Pain and Perseverance
Understanding Epidermolysis Bullosa: A Journey of Pain and Perseverance
Recent survey reveals new findings about symptoms of pain and fatigue in people living with IgAN
Recent survey reveals new findings about symptoms of pain and fatigue in people living with IgAN
Dr. David Fajgenbaum: How one doctor turned hope into action to treat his own rare disease
Dr. David Fajgenbaum: How one doctor turned hope into action to treat his own rare disease
Improving Access to Specialized Care For Myositis
Improving Access to Specialized Care For Myositis
Promising News from a Clinical Study in Becker Muscular Dystrophy
Promising News from a Clinical Study in Becker Muscular Dystrophy
Living Your Dreams When Living with Rare Disease: How Chris Anselmo Learned to Follow His Heart
Living Your Dreams When Living with Rare Disease: How Chris Anselmo Learned to Follow His Heart
Organization Spotlight: CureGRIN
Organization Spotlight: CureGRIN
Sara Mazzilli
Previous

The Loneliness of a Clinical Trial
Next

Getting Treatment and Dealing With Insurance