Getting Treatment and Dealing With Insurance

For the past 7 months, Rare Human Lindsay has been trying to enroll in a clinical trial for her dermatomyositis. Learn about the challenges that she faced along the way and how her rheumatologist helped her receive out-of-state insurance coverage. Watch til the end for “the most perfect and scariest doctor mic drop of all time”!

Are you also interested in the latest research opportunities available in your rare disease? You can connect with a member of the Know Rare team by emailing support@knowrare.com. 


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Caring for the Unseen: Supporting Caregivers of Those with Rare Diseases