The Loneliness of a Clinical Trial

Written By Sara Mazzilli

"לא ידעתי שזה ירגיש כל כך בודד להיות בניסוי קליני" - הנה אחד מהלקחים הרבים שלמדה לינדזי, אדם נדיר, שהצטרפה לניסוי קליני מוקדם יותר השנה בגלל מיוזיטיס שלה. 

לינדזי מדברת על כמה קשה שאין קהילה לפנות אליה, במיוחד כשיש רק מעט חולים עם המחלה הנדירה שלה שחוו את אותו טיפול שהיא עברה זה עתה.

Navigating rare disease care can be exceptionally complex. If you are interested in learning more about the latest research opportunities in your rare disease, you can contact the Know Rare Support Team at support@knowrare.com.

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