The Loneliness of a Clinical Trial

Written By Sara Mazzilli

«No sabía que me sentiría tan sola participando en un ensayo clínico». Esta es una de las muchas lecciones que aprendió Lindsay, una persona con una enfermedad rara, que se unió a un ensayo clínico a principios de este año para tratar su miositis. 

Lindsay habla de lo difícil que es no teneruna comunidad a la que recurrir, especialmente cuando solo hay unos pocos pacientes con su rara enfermedad que hayan pasado por el mismo tratamiento que ella acaba de recibir.

Orientarse en el ámbito de la atención médica de las enfermedades raras puede resultar extremadamente complejo. Si te interesa obtener más información sobre las últimas oportunidades de investigación relacionadas con tu enfermedad rara, puedes ponerte en contacto con el equipo de apoyo de Know Rare en support@knowrare.com.

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