A Rare Mom's Take on Living with Refractory Seizures

VIDEOS & PODCASTS
Written By Know Rare Team

Samantha Deschenes, una madre poco común, nos ofrece una visión sin filtros de su singular experiencia como madre. Desde la adaptación a la "nueva normalidad" de ser testigo de las convulsiones refractarias de su hijo hasta los desafíos inesperados de la atención profesional, se abre sobre las diversas luchas y triunfos a los que se enfrenta cada día.

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Blog v2
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Having a Rare Disease is a Full-Time Job
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Know Rare Team
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