A Rare Mom's Take on Living with Refractory Seizures

VIDEOS & PODCASTS
Written By Know Rare Team

Die seltene Mutter Samantha Deschenes gewährt uns einen unverfälschten Einblick in ihre einzigartige Reise als Elternteil. Von der Anpassung an die „neue Normalität“, in der sie die refraktären Anfälle ihres Kindes miterlebt, bis hin zu den unerwarteten Herausforderungen der professionellen Pflege spricht sie offen über die verschiedenen Schwierigkeiten und Erfolge, denen sie täglich begegnet.

Bei Ihnen wurde eine seltene Krankheit diagnostiziert? Wenden Sie sich jederzeit per E-Mail an Know Rare support@knowrare.com.

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Know Rare Team
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