Il punto di vista di una mamma su come convivere con le crisi epilettiche refrattarie

VIDEOS & PODCASTS
Written By Know Rare Team

La mamma rara Samantha Deschenes ci offre uno sguardo senza filtri sul suo singolare percorso di genitore. Dall'adattamento alla "nuova normalità" di assistere alle crisi refrattarie di suo figlio alle sfide inaspettate dell'assistenza professionale, Samantha Deschenes ci parla delle varie lotte e dei trionfi che affronta ogni giorno.

Ti è stata diagnosticata una malattia rara? Contatta Know Rare in qualsiasi momento inviando un'e-mail all'indirizzo support@knowrare.com.

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Blog v2
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Sharing the Silver Linings of Living with a Rare Disease
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Having a Rare Disease is a Full-Time Job
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Know Rare Team
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