וידאו ופודקאסטים Featured Accepting Help is Hard Choosing What to Care About When Navigating a Rare Disease Sharing the Silver Linings of Living with a Rare Disease Worst Thing to Say to Someone Living with a Rare Disease Why Rare Disease Patients Fight So Hard for Clinical Trials Having a Rare Disease is a Full-Time Job The Waiting Game in a Rare Disease Clinical Trial The Loneliness of a Clinical Trial What I Didn’t Know About The Clinical Trial Selection Process Getting Treatment and Dealing With Insurance In the Shadow of Rare: Growing Up as the Healthy Sibling Finding Your Voice: Writing About Your Rare Disease Story Announcing Know Rare’s New Podcast Series: Rare Insights Know Rare Connect: Living With Myositis A Rare Mom's Take on Living with Refractory Seizures Journaling Your Journey Connect with Members of the Know Rare Team
