Know Rare Team 5/31/24 Know Rare Team 5/31/24

Know Rare Connect: Living With Myositis

Journalist Lindsay Guentzel describes navigating a diagnostic odyssey and how she manages day-to-day life with myositis in an impactful webinar.

$La visión de una madre poco común sobre cómo vivir con convulsiones refractarias$

Know Rare Team 10/10/23 Know Rare Team 10/10/23

La visión de una madre poco común sobre cómo vivir con convulsiones refractarias

Rare mom Samantha Deschenes gives us an unfiltered look into life as a parent to a child with refractory seizures.

Know Rare Team 10/10/23 Know Rare Team 10/10/23

Anota tu viaje en un diario

Join Know Rare in a heartfelt exploration of the profound impact of journaling on the lives of those touched by rare diseases. In the “Know Rare Connect: Journaling Your Journey” webinar.

Know Rare Team 10/10/23 Know Rare Team 10/10/23

Ponte en contacto con los miembros del equipo de Know Rare

In this recap of our first live Know Rare Connect event, we meet some incredible members of the Know Rare team and hear their stories.