AI Powered Rare Patient Network & Real World
Data Platform

Know Rare connects researchers & industry with our global patient network & real-world evidence to fuel better outcomes

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IN PRIMO PIANO

About Our Network

Connecting the people, researchers and communities in rare disease

25,000+

Membri affetti da malattie rare

300+

Centri medici in tutto il mondo

50+

Organizzazioni di pazienti

Come aiutiamo

Programs that utilize our patient network and real world data platform to power all stages of therapeutic development

Pre Clinical

Utilize our patient app and network to help with research, trial planning, and observational studies

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Commercialization

Advanced patient reach and engagement for in market therapies through our app and patient network

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Studi clinici

Proven, targeted patient recruitment program that’s successfully helped recruit over 40 global clinical trials

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How it Works

Our AI tech platforms show insights on our programs through easy to use dashboards, providing metrics & transparency at all times

Machine learning–powered platform identifies eligible patients for clinical and observational trials, optimizing researcher–participant connection and accelerating study enrollment

AI-enabled platform delivering strategic insights from ongoing patient engagement and real-world data—driving smarter decisions across early to late-stage therapeutic development

Proven Results

Success across multiple therapeutic areas that have helped fuel programs and research studies throughout the world

60%

Average Network Engagement Rate

25%

Average Network Recontact Rate

75%

Average Rate for Randomization

    • Myasthenia Gravis (gMG)

    • Amyotrophic Lateral Sclerosis (ALS)

    • Tubular Sclerosis Complex (TSC)

    • Myositis (IIM)

    • Neuropatia motoria multifocale (MMN)

    • Systemic Lupus Erythematosus (SLE)

    • Bullous Pemphigoid (BP)

    • Pemphigus Vulgaris (PV)

    • NUT Carcinoma

    • Rare Liposarcoma

    • Acute Myeloid Leukemia (AML)

    • Sickle Cell Disease

    • Trombocitopenia immune (ITP)

    • Autoimmune Hemolytic Anemia (AIHA)

    • Sanfilippo Syndrome (MPS-III)

    • X-linked Myotubular Myopathy (XLMTM)

    • Focal Segmental-Glomerulosclerosis (FSGS)

    • Pulmonary Arterial Hypertension (PAH)

    • IgAN Kidney Disease

    • Prader Willi Syndrome (PWS)

    • Lysosomal Acid Lipase Deficiency (LALD)

    • Organic Acidemias (PA, MMA)

Ultime notizie Stampa

Leggi le ultime notizie su come stiamo facendo la differenza nelle malattie rare

Know Rare lancia l'app di diario HealthStoryAI che utilizza l'AI e la tecnologia del linguaggio naturale per aiutare le persone affette da malattie rare

Nuova app progettata come cartella clinica e diario per i pazienti. La piattaforma AI consente ai pazienti di registrare le esperienze e condividere le informazioni.

L'app per il diario della salute sfrutta le più recenti tecnologie di IA e di elaborazione del linguaggio naturale (NLP) per avere un impatto sull'assistenza sanitaria

Latest From Our Blog

Leggete i viaggi delle persone che vivono ogni giorno con una malattia rara e scoprite i ricercatori sulle malattie rare che lavorano per creare un futuro migliore.

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