AI Powered Rare Patient Network & Real World
Data Platform
Know Rare connects researchers & industry with our global patient network & real-world evidence to fuel better outcomes
DESTACADO EN
About Our Network
Connecting the people, researchers and communities in rare disease
25,000+
Miembros con enfermedades raras
300+
Centros médicos en todo el mundo
50+
Organizaciones de pacientes
How We Help
Programs that utilize our patient network and real world data platform to power all stages of therapeutic development
Pre Clinical
Utilize our patient app and network to help with research, trial planning, and observational studies
Commercialization
Advanced patient reach and engagement for in market therapies through our app and patient network
Ensayos clínicos
Proven, targeted patient recruitment program that’s successfully helped recruit over 40 global clinical trials
How it Works
Our AI tech platforms show insights on our programs through easy to use dashboards, providing metrics & transparency at all times
Machine learning–powered platform identifies eligible patients for clinical and observational trials, optimizing researcher–participant connection and accelerating study enrollment
AI-enabled platform delivering strategic insights from ongoing patient engagement and real-world data—driving smarter decisions across early to late-stage therapeutic development
Proven Results
Success across multiple therapeutic areas that have helped fuel programs and research studies throughout the world
60%
Average Network Engagement Rate
25%
Average Network Recontact Rate
75%
Average Rate for Randomization
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Myasthenia Gravis (gMG)
Amyotrophic Lateral Sclerosis (ALS)
Tubular Sclerosis Complex (TSC)
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Myositis (IIM)
Multifocal Motor Neuropathy (MMN)
Systemic Lupus Erythematosus (SLE)
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Bullous Pemphigoid (BP)
Pemphigus Vulgaris (PV)
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NUT Carcinoma
Rare Liposarcoma
Acute Myeloid Leukemia (AML)
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Sickle Cell Disease
Immune Thrombocytopenia (ITP)
Autoimmune Hemolytic Anemia (AIHA)
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Sanfilippo Syndrome (MPS-III)
X-linked Myotubular Myopathy (XLMTM)
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Focal Segmental-Glomerulosclerosis (FSGS)
Pulmonary Arterial Hypertension (PAH)
IgAN Kidney Disease
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Prader Willi Syndrome (PWS)
Lysosomal Acid Lipase Deficiency (LALD)
Organic Acidemias (PA, MMA)
Últimas noticias Noticias
Lee las últimas noticias sobre cómo estamos marcando la diferencia en el ámbito de las enfermedades raras
Latest From Our Blog
Lee las historias de personas que conviven a diario con una enfermedad rara y descubre quiénes son los investigadores que trabajan para crear un futuro mejor.
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Entra Contacto
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