Living with Wandering spleen
A rare condition in which the spleen is not held firmly in place and can move around in the belly.
Understanding Wandering spleen
It can be present from birth (congenital), which GARD says is not hereditary. It can also be acquired, from injuries or other conditions that weaken those ligaments. Some people have no symptoms.
Signs & symptoms
Some people have no symptoms. GARD lists these possible symptoms:
- Enlarged spleen (splenomegaly)
- Belly pain
- Bowel blockage
- Nausea and vomiting
- Fever
- A lump in the belly or pelvis
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it can be present from birth or acquired after injury or other conditions that weaken the ligaments holding the spleen. The congenital form is not hereditary.
Also known as: lien migrans; lien mobilis
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Wandering spleen.
Explore research for Wandering spleen
Explore actively recruiting Wandering spleen studies with HealthSpark.
Find actively recruiting studies for Wandering spleen with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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