Living with Virus-associated trichodysplasia spinulosa
A rare skin infection caused by a virus, with small bumps and tiny spikes mostly on the face, in people with weakened immunity.
Understanding Virus-associated trichodysplasia spinulosa
It causes small bumps (follicular papules) with tiny keratin spikes, mostly on the face, such as the nose, eyebrows, and ears. GARD says it occurs in people with weakened immune systems. It can begin at any time in life.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary describes these:
- Small skin bumps (follicular papules)
- Tiny spikes of keratin on the bumps
- Bumps mainly on the face
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Skin Disease Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it is due to polyomavirus infection in people with weakened immune systems.
Also known as: cyclosporine-induced folliculodystrophy; pilomatrix dysplasia; trichodysplasia spinulosa; ts; vats
Patient organizations
- Children's Skin Disease FoundationSkin diseases · United States
Broader rare-disease groups
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Virus-associated trichodysplasia spinulosa.
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