Living with Vasculitis, lymphocytic, nodular
A skin condition in which white blood cells damage small blood vessels in the skin.
Understanding Vasculitis, lymphocytic, nodular
It is one of several conditions called cutaneous vasculitis. Symptoms depend on the size, location, and severity of the affected area. In a minority of people, it can be part of a more widespread form that affects other organs, called systemic vasculitis.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Vasculitis Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Vasculitis Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Vasculitis Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says several factors may play a role, but the exact cause of most cases is not known. It lists autosomal dominant inheritance.
Patient organizations
- Vasculitis FoundationVasculitis, lymphocytic, nodular · United States
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