Living with Uterine synechiae
Scar-like tissue inside the uterus, usually after uterine surgery, that can change periods and affect fertility.
Understanding Uterine synechiae
It is acquired, meaning it is not inherited. GARD links it to a history of curettage or other surgery inside the uterus. It mainly affects adults. It can change menstrual periods, cause pelvic pain, and make it harder to become or stay pregnant.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Changes in the menstrual cycle
- Light or infrequent periods (oligomenorrhea)
- Lower fertility
- Pelvic pain
- Pregnancy loss
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include maternal-fetal medicine specialists and women’s reproductive health specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Resolve: The National Infertility Association may keep lists of experts for this condition.
Care & treatment
- Care team
- Maternal-fetal medicine specialists (pregnancy-related); Women’s reproductive health specialists (obstetricians / gynecologists)
- Expert care
- Expert lists: Resolve: The National Infertility Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Resolve: The National Infertility Association
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says this condition is acquired and linked to a history of curettage or intrauterine surgery. It doesn't list a gene or inheritance pattern.
Also known as: asherman syndrome; asherman's syndrome; intrauterine adhesions; intrauterine synechiae; traumatic intrauterine synechiae syndrome
Patient organizations
- Resolve: The National Infertility AssociationUterine synechiae · United States
You are more than your diagnosis
Perspectives from people navigating life with Uterine synechiae.
Explore research for Uterine synechiae
Explore actively recruiting Uterine synechiae studies with HealthSpark.
Find actively recruiting studies for Uterine synechiae with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Uterine synechiae studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Uterine synechiae
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Uterine synechiae experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.