Living with Urinary bladder small cell neuroendocrine carcinoma
A fast-growing bladder cancer that looks like small cell lung cancer under the microscope and mainly affects adults.
Understanding Urinary bladder small cell neuroendocrine carcinoma
It mainly affects adults. In most cases it is linked with carcinoma in situ, an early cancer that has not spread beyond the lining of the bladder. Common signs involve urination.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- A growth in the bladder (bladder neoplasm)
- Blood in the urine (hematuria)
- Painful or hard urination (dysuria)
- Belly pain
- Frequent urinary tract infections
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists, hormone specialists and urinary and male reproductive system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Cancer specialists (oncologists); Hormone specialists (endocrinologists); Urinary and male reproductive system specialists (urologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Bladder Cancer Advocacy Network
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: bladder small cell neuroendocrine cancer; bladder small cell neuroendocrine carcinoma; poorly differentiated neuroendocrine carcinoma of the bladder; sccb; small cell bladder cancer; small cell bladder carcinoma
Patient organizations
- Bladder Cancer Advocacy NetworkUrinary bladder small cell neuroendocrine carcinoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Urinary bladder small cell neuroendocrine carcinoma.
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