Living with Tubulointerstitial nephritis and uveitis syndrome
An autoimmune condition with kidney inflammation and eye inflammation (uveitis).
Understanding Tubulointerstitial nephritis and uveitis syndrome
In an autoimmune condition the immune system attacks the body's own tissues. This one affects the tubules and surrounding tissue of the kidneys and the middle layer of the eye (uvea). It can appear at a variety of ages.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Inflammation in the eye (uveitis)
- Eye pain and red eye
- Kidney inflammation (tubulointerstitial nephritis)
- Lower kidney filtering rate
- Fatigue and fever
- Weight loss
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists and kidney specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists); Kidney specialists (nephrologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with National Kidney Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD describes this as an autoimmune disorder. It doesn't describe a specific cause or gene.
Also known as: acute tubulointerstitial nephritis and uveitis syndrome; dobrin syndrome; tinu - tubulointerstitial nephritis with uveitis syndrome; tinu syndrome; tubulointerstitial nephritis and uveitis; tubulointerstitial nephritis with uveitis
Patient organizations
- National Kidney FoundationKidney diseases · United States
- Renal Support NetworkKidney diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Tubulointerstitial nephritis and uveitis syndrome.
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