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Living with Tuberculosis

A bacterial infection that usually affects the lungs but can also affect the kidneys, spine, and brain.

Understanding Tuberculosis

Tuberculosis (TB) is a bacterial disease that usually attacks the lungs but can also affect other parts of the body.

Not everyone infected with TB bacteria becomes sick. There are two types: inactive (latent) TB infection, where the germs live in the body but don't make you sick, and TB disease (active TB), where you get sick. GARD says TB disease can almost always be cured with antibiotics when treated properly. It is found in the U.S. but is more common in certain other countries.

Signs & symptoms

GARD doesn't list specific symptoms for this condition yet.

Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.

Diagnosis

  1. Talk with your doctor

    Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.

  2. See a specialist

    Your doctor may refer you to a specialist who knows rare conditions.

  3. Ask which tests can help

    Your care team will decide which exams and tests can confirm the diagnosis.

Care & treatment

Care team
A doctor familiar with rare conditions, plus specialists as needed
Expert care
Ask about multidisciplinary care centers for rare conditions
Treatment
GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
Research
Clinical trials and observational studies may be options. See the research section below.

General information, not medical advice. Your care team makes the decisions.

Everyday life

Living with a rare condition is easier with support.

  • Connect with American Lung Association
  • Keep notes on symptoms, changes and questions for appointments
  • Ask about patient registries that help research
  • Look into financial aid and travel resources for care visits
Bring these questions to your next doctor visit
Do I have latent TB infection or active TB disease?
What tests confirm which type I have?
What treatment is needed, and how long will it last?

Quick facts

Symptoms usually startany time in life

TB is caused by TB bacteria (germs).

Infectious

Also known as: infection caused by mycobacterium tuberculosis; tb - tuberculosis; tuberculosis disease; tuberculous

Patient organizations

Source: NIH GARD · TuberculosisGARD ID 7827 · GARD page updated September 2026 · Plain-language summary by Know Rare; editorial review pending. General information, not medical advice.

You are more than your diagnosis

Perspectives from people navigating life with Tuberculosis.

Explore the Tuberculosis blog

Explore research for Tuberculosis

Explore actively recruiting Tuberculosis studies with HealthSpark.

HealthSpark

Find actively recruiting studies for Tuberculosis with HealthSpark. Share your city to explore research near you.

  • Recruiting studies from ClinicalTrials.gov
  • Share your city to look for research near you
  • Eligibility is confirmed by the study team

Powered by HealthSpark, our AI chat helper

I can help you find recruiting Tuberculosis studies. Enter a ZIP code, address or city below and I'll look within 50 miles.

Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.

Get Signals for Tuberculosis

Stay in the loop with community stories and updates from medical researchers.

HealthStoryfor Tuberculosis

Create a living journal that talks back

HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Tuberculosis experiences more deeply and prepare for better conversations with your doctors and care team.

Start your Tuberculosis journal

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