Living with Tricuspid atresia
A rare heart defect present at birth in which the valve between the right upper and lower heart chambers is missing or blocked.
Understanding Tricuspid atresia
The right lower chamber (ventricle) is then very small. It often comes with other heart differences, such as a hole between the heart's upper chambers, a hole between the lower chambers, narrowing of the path to the lungs, or switched main arteries. It is noticed during pregnancy or after birth.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Bluish skin color (cyanosis)
- Small right lower heart chamber
- Hole between the upper heart chambers (atrial septal defect)
- Hole between the lower heart chambers (ventricular septal defect)
- Switched main arteries (transposition of the great arteries)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include heart and blood vessel specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Conquering CHD may keep lists of experts for this condition.
Care & treatment
- Care team
- Heart and blood vessel specialists (cardiologists)
- Expert care
- Expert lists: Conquering CHD
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Conquering CHD
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: congenital atresia of tricuspid valve; imperforate right atrioventricular valve; right atrioventricular valve atresia; tricuspid atresia (disease); tricuspid valve atresia
Patient organizations
- Conquering CHDTricuspid atresia · United States
You are more than your diagnosis
Perspectives from people navigating life with Tricuspid atresia.
Explore research for Tricuspid atresia
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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