Living with Transient myeloproliferative syndrome
A blood cell overgrowth in newborns with Down syndrome that usually clears up on its own.
Understanding Transient myeloproliferative syndrome
It looks the same as acute myeloid leukemia under the microscope and is linked to GATA1 gene changes. In most babies it clears up on its own (spontaneous remission). It starts during pregnancy or in the newborn period.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Blood Cancer United and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it is associated with changes in the GATA1 gene, in newborns with Down syndrome.
Also known as: leukemia, transient; leukemia, transient, of down syndrome; mst; tam; tmd; transient abnormal myelopoiesis
Patient organizations
- Blood Cancer UnitedBlood or bone marrow disease · United States
- HealthTree FoundationBlood or bone marrow disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Transient myeloproliferative syndrome.
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