Living with Teratoma with malignant transformation
A rare tumor in which some cells of a teratoma become cancerous, most often in the testes or ovaries.
Understanding Teratoma with malignant transformation
A teratoma is a mass that forms when germ cells grow and divide abnormally. About 6% of teratomas change in this way, which is called malignant transformation. TMTs can occur anywhere in the body, but most are in the testes in men or the ovaries in women.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause of TMT is unknown.
Also known as: dermoid cyst with malignant transformation; dermoid cyst with secondary tumor
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Teratoma with malignant transformation.
Explore research for Teratoma with malignant transformation
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- Eligibility is confirmed by the study team
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