Living with T-cell/histiocyte rich large B cell lymphoma
A rare type of lymphoma that mainly affects middle-aged men and is often found at an advanced stage.
Understanding T-cell/histiocyte rich large B cell lymphoma
It mainly affects middle-aged men. It is often not found until an advanced stage, and it involves the spleen, liver, and bone marrow more often than typical diffuse large B-cell lymphoma. It can be hard to diagnose because it looks like other lymphoid diseases such as Hodgkin lymphoma.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: histiocyte-rich large b-cell lymphoma; t-cell histiocyte rich large b-cell lymphoma; t-cell hystiocyte rich large b-cell lymphoma; t-cell rich large b-cell lymphoma; t-cell rich/histiocyte-rich large b-cell lymphoma; t-cell/histiocyte rich large b-cell lymphoma
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with T-cell/histiocyte rich large B cell lymphoma.
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