Living with T-cell prolymphocytic leukemia
A rare blood cancer of T cells that affects adults and can involve the blood, bone marrow, lymph nodes, liver, and spleen.
Understanding T-cell prolymphocytic leukemia
It involves the growth of small to medium-sized prolymphocytes. It can affect the blood, bone marrow, lymph nodes, liver, spleen, and sometimes the skin. People typically have an enlarged liver and spleen, swollen lymph nodes, a high white blood cell count, anemia, and low platelets. It occurs in adults and older adults.
Signs & symptoms
Symptoms vary from person to person. GARD lists these:
- Enlarged liver and spleen
- Swollen lymph nodes
- High white blood cell count
- Anemia
- Low platelet count
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Blood Cancer United and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: cll, t-cell; prolymphocytic leukemia of t-cell type; prolymphocytic leukemia, t-cell type; t cell chronic lymphocytic leukaemia; t cell chronic lymphocytic leukemia; t cell cll
Patient organizations
- Blood Cancer UnitedT-cell prolymphocytic leukemia · United States
- HealthTree FoundationT-cell prolymphocytic leukemia · United States
You are more than your diagnosis
Perspectives from people navigating life with T-cell prolymphocytic leukemia.
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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