Living with Systemic-onset juvenile idiopathic arthritis
A rare childhood rheumatic disease with long-lasting joint swelling, high spiking fevers, and a rash.
Understanding Systemic-onset juvenile idiopathic arthritis
Children have chronic arthritis and intermittent high spiking fevers. A rash may appear during fevers. The liver, spleen, and lymph nodes may be enlarged, and the lining of the lungs or heart can be inflamed (serositis). It usually begins in childhood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Arthritis with joint pain and swelling
- High spiking fevers
- Skin rash during fevers
- Swollen lymph nodes
- Enlarged liver or spleen
- Autoimmune problems
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include autoimmune and inflammatory disease specialists and lung and breathing specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- autoimmune and inflammatory disease specialists (rheumatologists); Lung and breathing specialists (pulmonologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with The International Foundation for Autoimmune & Autoinflammatory Arthritis
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: sjia; sojia; still disease; systemic polyarthritis; systemic-onset jia
Patient organizations
- The International Foundation for Autoimmune & Autoinflammatory ArthritisSystemic-onset juvenile idiopathic arthritis · United States
You are more than your diagnosis
Perspectives from people navigating life with Systemic-onset juvenile idiopathic arthritis.
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