Living with Synovial sarcoma
A rare soft tissue cancer that can cause a growing lump, swelling, or pain.
Understanding Synovial sarcoma
As the tumor grows, people may notice a lump or swelling. The tumor can limit range of motion or cause numbness or pain if it presses on nearby nerves. The tumor cells usually have a swap of material between chromosomes X and 18, which is specific to this cancer and often used to diagnose it. It can occur at any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD describes these:
- A lump or swelling
- Limited range of motion
- Numbness
- Pain from pressure on nearby nerves
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Alex's Lemonade Stand Foundation and Sarcoma Foundation of America may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists)
- Expert care
- Expert lists: Alex's Lemonade Stand Foundation, Sarcoma Foundation of America
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Alex's Lemonade Stand Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is not clearly defined, but genetic factors are believed to play a role. The tumor cells usually carry a translocation (swap) between chromosomes X and 18.
Also known as: malignant synovioma; sarcoma, synovial, malignant; synovial sarcoma (disease); synovialosarcoma; synovioma; synovioma, malignant
Patient organizations
- Alex's Lemonade Stand FoundationSynovial sarcoma · United States
- Sarcoma Foundation of AmericaSynovial sarcoma · United States
- American Cancer SocietySynovial sarcoma · United States
- Ben's FriendsSynovial sarcoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Synovial sarcoma.
Explore research for Synovial sarcoma
Explore actively recruiting Synovial sarcoma studies with HealthSpark.
Find actively recruiting studies for Synovial sarcoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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