Living with Supravalvular pulmonary stenosis
A heart blood vessel difference in which the artery to the lungs is narrowed just above the pulmonary valve.
Understanding Supravalvular pulmonary stenosis
The narrowing is at the pulmonary sinotubular junction, just above the valve that leads to the lungs. GARD does not say much more about this condition yet.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include heart and blood vessel specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Adult Congenital Heart Association may keep lists of experts for this condition.
Care & treatment
- Care team
- Heart and blood vessel specialists (cardiologists)
- Expert care
- Expert lists: Adult Congenital Heart Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Adult Congenital Heart Association
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: supravalvar pulmonary stenosis; supravalvar pulmonnic stenosis; supravalvular pulmonic stenosis
Patient organizations
- Adult Congenital Heart AssociationSupravalvular pulmonary stenosis · United States
You are more than your diagnosis
Perspectives from people navigating life with Supravalvular pulmonary stenosis.
Explore research for Supravalvular pulmonary stenosis
Explore actively recruiting Supravalvular pulmonary stenosis studies with HealthSpark.
Find actively recruiting studies for Supravalvular pulmonary stenosis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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