Living with Subcutaneous panniculitis-like T-cell lymphoma
A rare lymphoma, a type of blood cancer, that mainly affects the skin with painless nodules under it.
Understanding Subcutaneous panniculitis-like T-cell lymphoma
Lymphomas are cancers that come from white blood cells growing out of control. In SPTCL, multiple painless nodules form in the fat layer under the skin and can cause swelling, called panniculitis. A skin biopsy can diagnose it. It can occur at any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Painless lumps under the skin
- Red raised patches on the skin
- Fever and chills
- Tiredness
- Weight loss
- Enlarged liver and spleen
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists, cancer specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is unknown, but genetic factors may be involved.
Also known as: sptcl; subcutaneous panniculitic cutaneous t-cell lymphoma; subcutaneous panniculitic t-cell lymphoma; subcutaneous panniculitis-like t-cell lymphoma (alpha/beta type); subcutaneous panniculitis-like t-cell lymphoma, alpha/beta type
Patient organizations
- American Cancer SocietySubcutaneous panniculitis-like T-cell lymphoma · United States
- Blood Cancer UnitedSubcutaneous panniculitis-like T-cell lymphoma · United States
- Cancer Support CommunitySubcutaneous panniculitis-like T-cell lymphoma · United States
- Lymphoma Research FoundationSubcutaneous panniculitis-like T-cell lymphoma · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Subcutaneous panniculitis-like T-cell lymphoma.
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