Living with Situs inversus with levocardia
A condition in which the heart is in its usual place but other internal organs are arranged as a mirror image.
Understanding Situs inversus with levocardia
It may occur alone or with heart defects, heart rhythm problems (such as sick sinus syndrome or atrioventricular node disorder), spleen differences (absent, underdeveloped or extra spleen) and intestinal malrotation. It is not usually linked to chromosome changes.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Based on its summary, possible features include:
- Heart defects
- Heart rhythm problems
- Spleen differences
- Twisted or misplaced intestines (malrotation)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include heart and blood vessel specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Heart and blood vessel specialists (cardiologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Mended Hearts
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is not known. It is not usually associated with chromosome abnormalities.
Also known as: isolated levocardia; levocardia; levocardia with situs inversus; levocardia-situs inversus
Patient organizations
- Mended HeartsSitus inversus with levocardia · United States
You are more than your diagnosis
Perspectives from people navigating life with Situs inversus with levocardia.
Explore research for Situs inversus with levocardia
Explore actively recruiting Situs inversus with levocardia studies with HealthSpark.
Find actively recruiting studies for Situs inversus with levocardia with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Situs inversus with levocardia studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Situs inversus with levocardia
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Situs inversus with levocardia experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.