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Living with Silicosis

A lung disease caused by breathing in silica dust, most often in people who work with stone, sand or mining.

Understanding Silicosis

Silicosis is a respiratory disease caused by breathing in (inhaling) silica dust.

There are three types. Simple chronic silicosis may cause difficulty breathing. A faster type brings lung swelling and other symptoms more quickly. Acute silicosis follows short-term exposure to large amounts of dust. The lungs become inflamed and can fill with fluid, causing severe shortness of breath and low oxygen levels. Cough, weight loss and tiredness may also occur. People who work in mining, quarrying, construction, sand blasting or stone cutting are at risk.

Signs & symptoms

GARD doesn't list a full symptom list for this condition. Based on its summary, symptoms include:

  • Trouble breathing
  • Severe shortness of breath
  • Low blood oxygen
  • Cough
  • Weight loss
  • Tiredness

Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.

Diagnosis

  1. Talk with your doctor

    Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.

  2. See a specialist

    Your doctor may refer you to a specialist who knows rare conditions.

  3. Ask which tests can help

    Your care team will decide which exams and tests can confirm the diagnosis.

Care & treatment

Care team
A doctor familiar with rare conditions, plus specialists as needed
Expert care
Ask about multidisciplinary care centers for rare conditions
Treatment
GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
Research
Clinical trials and observational studies may be options. See the research section below.

General information, not medical advice. Your care team makes the decisions.

Everyday life

Living with a rare condition is easier with support.

  • Connect with American Lung Association
  • Keep notes on symptoms, changes and questions for appointments
  • Ask about patient registries that help research
  • Look into financial aid and travel resources for care visits
Bring these questions to your next doctor visit
Which lung tests will show how much damage there is?
How can I avoid more silica dust exposure?
What can help with shortness of breath?

Quick facts

GARD says silicosis is caused by breathing in silica dust, often through work in mining, quarrying, construction, sand blasting or stone cutting.

Also known as: accelerated silicosis; acute silicosis; chronic silicosis; experimental silicosis; nodular silicosis; pneumoconiosis caused by silica

Patient organizations

Source: NIH GARD · SilicosisGARD ID 7647 · GARD page updated September 2026 · Plain-language summary by Know Rare; editorial review pending. General information, not medical advice.

You are more than your diagnosis

Perspectives from people navigating life with Silicosis.

Explore the Silicosis blog

Explore research for Silicosis

Explore actively recruiting Silicosis studies with HealthSpark.

HealthSpark

Find actively recruiting studies for Silicosis with HealthSpark. Share your city to explore research near you.

  • Recruiting studies from ClinicalTrials.gov
  • Share your city to look for research near you
  • Eligibility is confirmed by the study team

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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.

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