Living with Sertoli-Leydig cell tumor
A rare ovarian cancer whose cells make male hormones, which can cause facial hair and a deeper voice.
Understanding Sertoli-Leydig cell tumor
The cancer cells make and release a male sex hormone, which may cause male physical features (virilization) such as facial hair and a deep voice. It is sometimes called arrhenoblastoma of the ovary or a stromal tumor. It makes up less than 0.5% of ovarian tumors. It can occur at any age but is most common in young women.
Signs & symptoms
GARD doesn't list specific symptoms for this condition. Its summary describes these:
- Facial hair growth
- Deepening of the voice
- Other male-like physical features (virilization)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Patient organizations
- American Cancer SocietySertoli-Leydig cell tumor · United States
- National Ovarian Cancer CoalitionSertoli-Leydig cell tumor · United States
- Ovarian Cancer Research AllianceSertoli-Leydig cell tumor · United States
You are more than your diagnosis
Perspectives from people navigating life with Sertoli-Leydig cell tumor.
Explore research for Sertoli-Leydig cell tumor
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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