Living with Serpiginous choroiditis
An eye condition with scarring lesions in the eye that last weeks to months and often come back, and can cause vision loss.
Understanding Serpiginous choroiditis
The lesions last from weeks to months, and they often come back. Vision loss may occur in one or both eyes when the macula (the center of the retina) is involved.
Signs & symptoms
GARD doesn't list specific symptoms for this condition. Its summary describes these:
- Lesions in the eye lasting weeks to months
- Scarring of eye tissue
- Lesions that come back
- Vision loss when the macula is involved
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Ocular Immunology and Uveitis Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists)
- Expert care
- Expert lists: Ocular Immunology and Uveitis Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Ocular Immunology and Uveitis Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: choroiditis, serpiginous; geographic helicoid peripapillary choroidopathy; serpiginous choroidal dystrophy; serpiginous choroidopathy
Patient organizations
- Ocular Immunology and Uveitis FoundationSerpiginous choroiditis · United States
You are more than your diagnosis
Perspectives from people navigating life with Serpiginous choroiditis.
Explore research for Serpiginous choroiditis
Explore actively recruiting Serpiginous choroiditis studies with HealthSpark.
Find actively recruiting studies for Serpiginous choroiditis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Serpiginous choroiditis studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Serpiginous choroiditis
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Serpiginous choroiditis experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.