Living with Sarcomatoid mesothelioma
A rare type of mesothelioma cancer caused by asbestos exposure, with spindle-shaped cells.
Understanding Sarcomatoid mesothelioma
It has both sarcomatous (connective tissue) and epithelial (lining) elements. The cells have an oval or spindle shape. It can occur in several organs, including the uterus, kidneys, lungs, and the lining of the belly (peritoneum). It makes up 10 to 20 percent of mesothelioma diagnoses.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Mesothelioma Guide
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it is caused by asbestos exposure.
Also known as: fibrous mesothelioma; fibrous mesothelioma, malignant; malignant fibrous mesothelioma; malignant fibrous mesothelioma (morphologic abnormality); sarcomatoid mesothelioma (morphologic abnormality); spindled mesothelioma
Patient organizations
- Mesothelioma GuideSarcomatoid mesothelioma · United States
You are more than your diagnosis
Perspectives from people navigating life with Sarcomatoid mesothelioma.
Explore research for Sarcomatoid mesothelioma
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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