Living with Sacrococcygeal teratoma
A rare growth (tumor) near the tailbone at the base of the spine, which is often non-cancerous.
Understanding Sacrococcygeal teratoma
It affects the area at the base of the spine. The tumor is often not cancerous (benign), but there is a chance it can become cancerous over time.
Signs & symptoms
GARD doesn't list specific symptoms for this condition. Its summary describes a growth near the tailbone.
- A growth (tumor) near the tailbone
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Fetal Health Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists)
- Expert care
- Expert lists: Fetal Health Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Fetal Health Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: pre-sacral teratoma; presacral teratoma
Patient organizations
- Fetal Health FoundationSacrococcygeal teratoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Sacrococcygeal teratoma.
Explore research for Sacrococcygeal teratoma
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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