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Living with Rickets

A condition in children that causes soft, weak bones, usually when they do not get enough vitamin D.

Understanding Rickets

Rickets is a condition that causes children to have soft, weak bones.

It usually occurs when children do not get enough vitamin D. Vitamin D helps growing bones absorb important nutrients. Vitamin D comes from sunlight and food. Skin makes it in response to the sun, and some foods contain it, including fortified dairy products and cereals and some kinds of fish.

Signs & symptoms

GARD doesn't list specific symptoms for this condition yet. Its summary describes soft, weak bones in children.

  • Soft, weak bones

Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.

Diagnosis

  1. Talk with your doctor

    Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.

  2. See a specialist

    Your doctor may refer you to a specialist who knows rare conditions.

  3. Ask which tests can help

    Your care team will decide which exams and tests can confirm the diagnosis.

  4. Connect with expert centers

    Little People of America may keep lists of experts for this condition.

Care & treatment

Care team
A doctor familiar with rare conditions, plus specialists as needed
Expert care
Expert lists: Little People of America
Treatment
GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
Research
Clinical trials and observational studies may be options. See the research section below.

General information, not medical advice. Your care team makes the decisions.

Everyday life

Living with a rare condition is easier with support.

  • Connect with Little People of America
  • Keep notes on symptoms, changes and questions for appointments
  • Ask about patient registries that help research
  • Look into financial aid and travel resources for care visits
Bring these questions to your next doctor visit
How is my child's vitamin D level checked?
How much sun and which foods can help get enough vitamin D?
How will we know if bones are healing?

Quick facts

It usually occurs when children do not get enough vitamin D. GARD does not list a gene or inheritance pattern.

Also known as: hypovitaminosis d; nutritional rickets; rachitis; rickets (disease); vitamin d deficiency disease; vitamin d hydroxylation-deficient rickets

Patient organizations

Source: NIH GARD · RicketsGARD ID 5700 · GARD page updated September 2026 · Plain-language summary by Know Rare; editorial review pending. General information, not medical advice.

You are more than your diagnosis

Perspectives from people navigating life with Rickets.

Explore the Rickets blog

Explore research for Rickets

Explore actively recruiting Rickets studies with HealthSpark.

HealthSpark

Find actively recruiting studies for Rickets with HealthSpark. Share your city to explore research near you.

  • Recruiting studies from ClinicalTrials.gov
  • Share your city to look for research near you
  • Eligibility is confirmed by the study team

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I can help you find recruiting Rickets studies. Enter a ZIP code, address or city below and I'll look within 50 miles.

Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.

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