Living with Reticulohistiocytic granuloma
A rare, non-cancerous skin or soft tissue lump, usually yellow to reddish-brown, most often seen on the trunk or limbs.
Understanding Reticulohistiocytic granuloma
It is also called reticulohistiocytoma. It belongs to a group of conditions called histiocytosis, where immune cells called histiocytes multiply quickly in the skin or soft tissue. The lump is smooth and firm and appears on the trunk or limbs. It has historically been found in young adults, a little more often in males.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary describes a lump:
- Firm, smooth lump or nodule
- Yellow to reddish-brown color
- Usually on the trunk or limbs
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Histiocytosis Association may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Histiocytosis Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Histiocytosis Association
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the trigger that makes the immune system react is not well understood. GARD does not list a gene or inheritance pattern.
Also known as: giant cell histiocytoma; reticulohistiocytic granuloma (morphologic abnormality); reticulohistiocytoma; reticulohistiocytoma cutis; solitary reticulohistiocytoma
Patient organizations
- Histiocytosis AssociationReticulohistiocytic granuloma · United States
You are more than your diagnosis
Perspectives from people navigating life with Reticulohistiocytic granuloma.
Explore research for Reticulohistiocytic granuloma
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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