Living with Pseudounicornuate uterus
A rare difference in the shape of the uterus, with one main horn and a smaller, underdeveloped second horn.
Understanding Pseudounicornuate uterus
The uterus is small and crescent-shaped with one horn and one fallopian tube, plus a rudimentary second horn. The second horn may be solid or have a cavity lined with uterine tissue. Urinary tract differences often occur alongside it.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. The summary describes these features:
- A small, crescent-shaped uterus with one main horn
- A rudimentary second horn
- Urinary tract differences
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include genetic specialists, maternal-fetal medicine specialists, urinary and male reproductive system specialists and women’s reproductive health specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Genetic specialists (geneticists); Maternal-fetal medicine specialists (pregnancy-related); Urinary and male reproductive system specialists (urologists); Women’s reproductive health specialists (obstetricians / gynecologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says gene changes cause this condition. It doesn't name a gene or describe inheritance yet.
Also known as: incomplete unilateral aplasia of mullerian ducts; incomplete unilateral aplasia of the mullerian ducts; incomplete unilateral aplasia of the müllerian ducts; incomplete unilateral mullerian aplasia; incomplete unilateral müllerian aplasia; unicornuate uterus with rudimentary horn
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Pseudounicornuate uterus.
Explore research for Pseudounicornuate uterus
Explore actively recruiting Pseudounicornuate uterus studies with HealthSpark.
Find actively recruiting studies for Pseudounicornuate uterus with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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