Living with Pseudopelade of Brocq
A slowly progressing condition that causes patches of scarring hair loss on the scalp.
Understanding Pseudopelade of Brocq
Patches of hair loss may be single or multiple. They are usually small, round or oval, and uneven in shape. The skin underneath is smooth, soft, and flesh-colored or white, with little or no inflammation. It usually starts in adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Patches of hair loss
- Thin hair on the scalp
- Smooth, soft, skin-colored or white skin in the patches
- Small bumps (papules)
- Skin infections that come back
- Thickened skin (lichenification)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Scarring Alopecia Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the exact cause isn't known, but it is believed to be an autoimmune disease. Infection with Borrelia burgdorferi (the Lyme disease bacterium) and failure of hair-growth stem cells may also play a role.
Also known as: brocq pseudopelade; pseudo-pelade of brocq; pseudopelade
Patient organizations
- Scarring Alopecia FoundationPseudopelade of Brocq · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Pseudopelade of Brocq.
Explore research for Pseudopelade of Brocq
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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