Living with Primary melanoma of the central nervous system
A rare melanoma that starts in the brain or spinal cord, mostly in adults.
Understanding Primary melanoma of the central nervous system
It is an aggressive tumor that does not respond well to radiation. Under the microscope, the cells vary in shape, contain dark pigment (melanin) and divide quickly, and there may be areas of dead tissue and bleeding. It usually appears in adults.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Melanoma Research Alliance and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: central nervous system melanoma; central nervous system melanoma (disease); cns melanoma; malignant melanoma of meninges; melanoma (disease) of central nervous system; melanoma of central nervous system
Patient organizations
- Melanoma Research AlliancePrimary melanoma of the central nervous system · United States
- National Brain Tumor SocietyPrimary melanoma of the central nervous system · United States
You are more than your diagnosis
Perspectives from people navigating life with Primary melanoma of the central nervous system.
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- Eligibility is confirmed by the study team
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