Living with Primary cutaneous follicle center lymphoma
A rare, slow-growing skin cancer of B cells that causes red patches or lumps, usually on the head, neck or trunk.
Understanding Primary cutaneous follicle center lymphoma
It appears as one or a group of red patches or lumps, usually on the head, neck or trunk. When there are several, they can grow around hair follicles, randomly, or both. The patches are smooth and do not usually break open.
Signs & symptoms
GARD describes these signs:
- One or more red patches or lumps
- Lumps on the head, neck or trunk
- Smooth skin lesions that don't usually break open
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists, cancer specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Lymphoma Research Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: crosti's disease; crosti's lymphoma; cutaneous follicle center lymphoma; cutaneous follicle centre lymphoma; pcfcl; primary cutaneous follicle center cell lymphoma
Patient organizations
- Lymphoma Research FoundationPrimary cutaneous follicle center lymphoma · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Primary cutaneous follicle center lymphoma.
Explore research for Primary cutaneous follicle center lymphoma
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- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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