Living with Primary condylar hyperplasia
A rare jaw joint condition in which one side of the lower jaw slowly overgrows, causing facial asymmetry and a bite that doesn't meet.
Understanding Primary condylar hyperplasia
It is not a tumor. The overgrowth is progressive and uneven. It leads to uneven facial shape, a lower jaw that shifts to one side, jaw joint problems and a bite that doesn't line up (malocclusion). It can happen at any time in life.
Signs & symptoms
GARD lists these among the most common signs:
- Uneven face (facial asymmetry)
- Lower jaw shifted to one side
- Jaw joint problems
- Front teeth that don't meet (open bite)
- Changes in the shape of the chin
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with TMJ Association, Ltd.
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: primary hyperplasia of mandibular condyle; type 1 condylar hyperplasia
Patient organizations
- TMJ Association, Ltd.Primary condylar hyperplasia · United States
You are more than your diagnosis
Perspectives from people navigating life with Primary condylar hyperplasia.
Explore research for Primary condylar hyperplasia
Explore actively recruiting Primary condylar hyperplasia studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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