Living with Postpartum amenorrhea-galactorrhea syndrome
A condition after childbirth in which milk production and missed periods continue in someone who is not breastfeeding.
Understanding Postpartum amenorrhea-galactorrhea syndrome
GARD gives only a short description of this condition. It has two main features: ongoing milk production (lactation) and no menstrual periods (amenorrhea).
Signs & symptoms
GARD describes these features:
- Ongoing milk production without breastfeeding
- No menstrual periods
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: chiari-frommel syndrome; frommel's disease; persistent postpartum amenorrhea-galactorrhea syndrome; postpartum amenorrhoea-galactorrhea syndrome; pregnancy-related a-g syndrome
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Postpartum amenorrhea-galactorrhea syndrome.
Explore research for Postpartum amenorrhea-galactorrhea syndrome
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- Recruiting studies from ClinicalTrials.gov
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