Living with Pneumonia caused by pseudomonas aeruginosa infection
A rare lung infection caused by Pseudomonas bacteria, seen in intensive care, in people with low white blood cells and in cystic fibrosis.
Understanding Pneumonia caused by pseudomonas aeruginosa infection
It happens in two ways. Primary pneumonia usually happens in the intensive care unit and is not caused by bacteria in the blood. Bacteremic pneumonia is caused by bacteria in the blood and is usually seen in people with low white blood cell counts. People with cystic fibrosis may have chronic lung infections with episodes of pneumonia. It can cause bleeding and damage in the lungs.
Signs & symptoms
Symptoms vary from person to person. GARD lists these:
- Fever and chills
- Shortness of breath
- Bluish skin color
- Coughing up mucus
- Feeling very sick
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include lung and breathing specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Lung and breathing specialists (pulmonologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The infection is caused by the bacterium Pseudomonas aeruginosa.
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Pneumonia caused by pseudomonas aeruginosa infection.
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