Living with Pleomorphic xanthoastrocytoma
A rare brain tumor of a grade II type that grows near the surface of the brain and mostly affects children and young adults.
Understanding Pleomorphic xanthoastrocytoma
It appears in the outer parts of the brain's cerebral hemispheres and involves the meninges, the membranes around the brain. It typically affects children and young adults.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Pediatric Brain Tumor Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: pleomorphic xantho-astrocytoma; pxa
Patient organizations
- Pediatric Brain Tumor FoundationPleomorphic xanthoastrocytoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Pleomorphic xanthoastrocytoma.
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