Living with Plasmacytoma
A cancer of plasma cells that forms a single mass, either in bone or in soft tissue such as the head and neck.
Understanding Plasmacytoma
It shows up as a single mass of abnormal plasma cells and makes up about 5% of all plasma cell cancers. The two types are plasmacytoma of the bone and extramedullary plasmacytoma of the soft tissues. Extramedullary types usually occur in the head and neck, are more common in men, and are usually diagnosed around age 50.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists, brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
The Foundation for Peripheral Neuropathy may keep lists of experts for this condition.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Expert lists: The Foundation for Peripheral Neuropathy
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: plasmacytoma - disorder; solitary myeloma; solitary plasmacytoma
Patient organizations
- American Cancer SocietyPlasmacytoma · United States
- Blood Cancer UnitedPlasmacytoma · United States
- HealthTree FoundationPlasmacytoma · United States
- The Foundation for Peripheral NeuropathyPeripheral neuropathy · United States
- Neuropathy Action FoundationPeripheral neuropathy · United States
You are more than your diagnosis
Perspectives from people navigating life with Plasmacytoma.
Explore research for Plasmacytoma
Explore actively recruiting Plasmacytoma studies with HealthSpark.
Find actively recruiting studies for Plasmacytoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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